Cancer Health Mantle Cell Lymphoma (MCL)

Doing My Best to Persist (UPDATED)

UPDATE 2: Thu Jun 17 2021 8:10 AM

Kaiser-Permanente is seriously concerned about the symptoms I’m presenting, especially in light of my history, recent numbers, and bloodwork.

They are holding a conference call between Oncology, Internal Medicine, and Infectious Diseases to discuss my history, symptoms, medication, and bloodwork, but I may need to go to Urgent Care or to be hospitalized today.  We’re currently trying to get nearby family/friends to watch Kiyomi, Toshiro, and Sachiko (our three Shelties) for us on VERY SHORT NOTICE.  We do not know how long I’ll be hospitalized, it could be hours/days/week or more.

UPDATE 1: Thu Jun 17 2021 6:30 AM

Meeting with Kaiser-Permanente to discuss Bloody Ulcerative Colitis
Meeting with Kaiser-Permanente to discuss Bloody Ulcerative Colitis

Acute Ulcerative Colitis (repeatedly bloody bowel movements)
Acute Ulcerative Colitis (repeatedly bloody bowel movements)

Dr. Nguyen,

Getting periodic flares of my ulcerative colitis is nothing new. Since our time at Seattle Cancer Care Alliance in January 2020, I’ve typically been getting 1-2 flares a month (roughly every 8-11 days) lasting 2 days each.

Starting on Sunday, June 6th, I’ve had steady-and-persistent symptoms of acute ulcerative colitis for nearly 2 weeks straight now. It’s been a steady watery and bloody diarrhea with clear “tripe” in multiple bowel movements. I’ve had near-daily abdominal cramps which are sometimes straining me to my limits of tolerance. For the past week, I’ve been “leaking” watery diarrhea, requiring me to wash my clothes daily and to wear diapers.

It’s all the same signs and symptoms I presented when I was positive for Cytomegalovirus (CMV).

Could you please request a CMV test for me, or any other tests which may be causing this change in my bowel habits?

Could you please refill my Lomotil and Oxycodone prescriptions? I’ve been taking roughly 3 Lomotil every day (2 at onset, an additional 1 an hour or two later with the next watery bowel movement). I’ve been taking Oxycodone sparingly and as-needed for the abdominal cramps.

Thanks in advance for your time and advice!

Sincerely,

Ken & Victoria Foreman

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