Traveling to Washington, DC for my latest full-body PET/CT scan
Results of my latest PET/CT scan
So my Ulcerative Colitis, Splenomegaly, and Severe Neutropenia (immunocompromised) are persistent, but my Stage 4 Mantle Cell Lymphoma appears to be controlled/in-remission since this February.
Given their findings, I’m hoping to meet with Johns Hopkins and Kaiser-Permanente on October 2nd to be medically cleared to return to work full-time (shifting my maintenance chemo from Fridays to Saturdays) and getting a written statement that I remain with colitis, lymphedema (swollen left leg), splenomegaly, and an immunocompromised state.
None of these conditions prevent me from working full-time, but the severe neutropenia would limit/prevent my working in a shared/open-workspace office.
You have been given so many challenges in these last two years. I am hopeful you will continue to have courage and energy to resume your “normal” life. We are rooting for you! Stay safe.
Thanks, Aunt Jane.
I’m thankful to be working from home on Mon-Thu, evenings/weekends as necessary, with Fridays off for medical appointments. Kaiser scheduled me for a full colonoscopy on Friday, October 23rd, to observe and gauge the extent of my ulcerative colitis. At this point, they suspect it’s radiation-induced colitis, and may be life-long or long-term.
Hanging in there. Seeing a number of our friends and co-workers getting COVID-19, with a couple in the hospital now. Vicky and I are doing our best to stay safe, stay protected.
We hope you and your family are doing the same! 🥰